In 2002 I was ... with ... Spindle, which is a fairly early sign of Pigment ... ... There is ... ... online, but the sites' seem a little cold and ...
In 2002 I was diagnosed with Krukenberg's Spindle, which is a fairly early sign of Pigment Dispersion Syndrome. There is information available online, but the sites' seem a little cold and impersonal, written by professionals for professionals. I wanted to find a site written by someone that actually had Krukenberg's Spindle, someone who was going through the same emotions as I was, rather than just feel that I was a statistic with an unusual eye condition, spoken about, rather than to!
For this reason, I have started a website specifically for people diagnosed with Krukenbergs Spindle and Pigment Dispersion Syndrome. It can be found at: http://www.krukenbergs-spindle.co.uk It's aim is to help inform people what these conditions are, what procedures can be taken to help, what to expect, etc. I am trying to assess just how many people worldwide have this condition, any differences in treatment and form a support group for those interested.
39 year old mum-of-two, living in Devon, UK. Have started a website related to both KS and PDS, written for others diagnosed with the above. Can be contacted about this article and the above site by emailing tracy@krukenbergs-spindle.co.uk
